Hotline – Election Day Closure

ATTENTION: HealthWell Foundation’s hotline will be closed on Tuesday, November 3, 2020 to allow our contact center team the flexibility to safely vote. The hotline will re-open on Wednesday, November 4, 2020 at 9:00 a.m. We encourage you to continue to use our Patient, Pharmacy and Provider Portals during this time.  Please note: if you are contacting us about a payment or grant, it is faster to email us at grants@healthwellfoundation.org.  The HealthWell Team.

 

 

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By Jonathan Gang, Communications Manager, ALS Therapy Development Institute  |  May 27, 2020

ALS and Precision Medicine: Learning from Patients Worldwide

The ALS Therapy Development Institute  (ALS TDI)  is a comprehensive drug discovery lab focused solely on amyotrophic lateral sclerosis (ALS). ALS is a progressive neurodegenerative disease that attacks the nerves responsible for voluntary movement. People with ALS can ultimately become completely paralyzed and the average life expectancy is usually between…more.

By Real World Health Care Editorial Staff  |  May 13, 2020

What is ALS?

May is ALS Awareness Month, and Real World Health Care wants to support the ALS patient community by bringing awareness to this disease. The following “primer” provides need-to-know information about Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. ALS Defined ALS is one of a group of conditions…more.

By Real World Health Care Editorial Staff  |  Apr 29, 2020

Growing Up with Huntington’s Disease

Next month marks Huntington’s Disease (HD) Awareness Month and Real World Health Care is dedicating this column to an important part of the Huntington’s patient community: children, teens and young adults. “Whether youth have a parent with Huntington’s or if they themselves have the early-onset form of the disease called…more.

By Real World Health Care Editorial Staff  |  Apr 23, 2020

Special Report: How do We Get People to Think Beyond Their Own Personal Risk?

Does the best science always inform the best behavior change? “In times of distress, human nature drives us toward each other. After 9-11, people came together. Physical contact with the people we cared about brought comfort. Maybe that’s why the public health messages about social distancing are not always getting…more.

Categories: General
By Real World Health Care Editorial Staff  |  Apr 8, 2020

Navigating Cognitive Changes in Parkinson’s Disease

Editor’s Note: The following has been excerpted, with permission, from Navigating Cognitive Changes in Parkinson’s Disease, published by The Michael J. Fox Foundation for Parkinson’s Research (MJFF). It was written by MJFF Vice President of Medical Communications and movement disorder specialist Rachel Dolhun, MD, in collaboration with Parkinson’s experts, the…more.

By Real World Health Care Editorial Staff  |  Mar 25, 2020

What Are Movement Disorders?

Throughout 2020, Real World Health Care will focus on Movement Disorders. Movement disorders are related to the nervous system. They include a variety of neurological conditions that cause increased, abnormal movements (voluntary or involuntary) or reduced, slow movements. Some movement disorders are inherited, while others are caused by infection, medication…more.

By Real World Health Care Editorial Staff  |  Mar 23, 2020

Special Report: Managing Your Mental Health During the COVID-19 Crisis

By now, most Americans are familiar with the physical symptoms of COVID-19, including cough, fever, and shortness of breath. However, coronavirus fears and COVID-19 diagnoses can cause more than just respiratory illness. They can lead to a range of mental health issues as well, including isolation, anxiety and stress. According…more.

Categories: General
By Real World Health Care Editorial Staff  |  Mar 19, 2020

Special Report: HealthWell Launches New Fund to Assist At-Risk or Quarantined Patients with COVID-19 Costs

Editor’s Note: Real World Health Care is pleased to share with our readers an announcement from our founding sponsor, the HealthWell Foundation, which has responded to the needs of its patient community with a new fund that promotes social distancing and provides assistance for needed services and products. We invite…more.

Categories: General
By Emily Burke, Ph.D., Director of Instruction, BiotechPrimer.com  |  Mar 11, 2020

Search & Destroy: Chimeric Antigen Receptor T-Cells (CAR-T)

Editor’s Note: The following article is reprinted, with permission from Biotech Primer. The original version appeared in the Biotech Primer WEEKLY. To subscribe to the Biotech Primer WEEKLY, click here. The first (and so far, only) chimeric antigen receptor T-cell (CAR-T) therapies—tisagenlecleucel and axicabtagene ciloleucel were approved in 2017, and…more.

By Real World Health Care Editorial Staff  |  Feb 26, 2020

People with Macular Degeneration Live Full Lives with Help from Ophthalmologists

Does a diagnosis of age-related macular degeneration (AMD) mean you can’t live a rich, fulfilling life? Not necessarily, according to the experts. “The initial diagnosis can be scary,” said Purnima S. Patel, MD, associate professor of ophthalmology at Emory University who also works at the Atlanta VA Medical Center and…more.

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