Hotline – Election Day Closure

ATTENTION: HealthWell Foundation’s hotline will be closed on Tuesday, November 3, 2020 to allow our contact center team the flexibility to safely vote. The hotline will re-open on Wednesday, November 4, 2020 at 9:00 a.m. We encourage you to continue to use our Patient, Pharmacy and Provider Portals during this time.  Please note: if you are contacting us about a payment or grant, it is faster to email us at grants@healthwellfoundation.org.  The HealthWell Team.

 

 

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By Desiree Lyon, Executive Director, American Porphyria Foundation  |  Apr 13, 2015

Collaboration among Patient Advocacy Groups, Scientists & Clinicians Moves Porphyria Research Ahead

Editor’s Note: Recognizing National Porphyria Awareness Week this week, we invited Desiree Lyon, the Executive Director of the American Porphyria Foundation (APF), to share how her organization is supporting research that improves treatment and ultimately seeks a cure for this rare disease.  Patient advocacy groups addressing rare diseases play a…more.

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