REMINDER: Our hotline team is working remotely and focusing their time on helping our patients.  We kindly ask pharmacies, providers, and their staff to use our Pharmacy and Provider Portals. Please note: if you are contacting us about a payment or grant, it is faster to email us at grants@healthwellfoundation.orgWe appreciate your continued patience and look forward to continuing to serve you. Wishing you all safety and good health during this difficult time. The HealthWell Team

 

Dismiss alert
By Desiree Lyon, Executive Director, American Porphyria Foundation  |  Apr 13, 2015

Collaboration among Patient Advocacy Groups, Scientists & Clinicians Moves Porphyria Research Ahead

Editor’s Note: Recognizing National Porphyria Awareness Week this week, we invited Desiree Lyon, the Executive Director of the American Porphyria Foundation (APF), to share how her organization is supporting research that improves treatment and ultimately seeks a cure for this rare disease.  Patient advocacy groups addressing rare diseases play a…more.

Close menu