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By Real World Health Care Editorial Staff  |  Feb 12, 2020

American Macular Degeneration Foundation Piecing Together the Puzzle of Age-Related Macular Degeneration

Macular degeneration is the leading cause of vision loss and blindness in those over 55. According to the American Macular Degeneration Foundation (AMDF), it affects more than 10 million Americans.  After the age of 75, one in three Americans is at risk of developing this incurable disease. While the cause…more.

Categories: General, Macular Degeneration
By Maria Carrillo, PhD, Alzheimer's Association Chief Scientific Officer  |  Jun 7, 2016

Alzheimer’s Association Outlines Research Priorities & Treatment Horizons

This week, Real World Health Care brings you a conversation with Maria Carrillo, PhD, Alzheimer’s Association Chief Scientific Officer. Formed in 1980, the Alzheimer’s Association advances research to end Alzheimer’s and dementia while enhancing care for those living with the disease. Real World Health Care: According to your literature, more…more.

Categories: Alzheimer's Disease, General, Prevention/Patient-Centered Care, Treatment Horizons
By Desiree Lyon, Executive Director, American Porphyria Foundation  |  Apr 13, 2015

Collaboration among Patient Advocacy Groups, Scientists & Clinicians Moves Porphyria Research Ahead

Editor’s Note: Recognizing National Porphyria Awareness Week this week, we invited Desiree Lyon, the Executive Director of the American Porphyria Foundation (APF), to share how her organization is supporting research that improves treatment and ultimately seeks a cure for this rare disease.  Patient advocacy groups addressing rare diseases play a…more.

Categories: Access to Care, General, Prevention/Patient-Centered Care
By Sharon Smith, MD FAAP and Charles Thompson, MD FAAP, Co-Leads, KIDS Connecticut  |  Apr 23, 2014

KIDS: Providing Children and Families a Voice in Medicine, Research, and Innovation

The active involvement of patients in health care choices, diseases, research, and innovation is an area of recent focus for many public and private entities (e.g., FDA’s Patient-Focused Drug Development initiative).  As an innovative method to engage children, the KIDS (Kids and Families Impacting Disease Through Science) project was launched…more.

Categories: Prevention/Patient-Centered Care
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