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New HealthWell Foundation Fund Offers Financial Assistance to Individuals Living with Hyperoxaluria

Fund Provides Copayment and Premium Assistance GERMANTOWN, Md. — November 4, 2020 — The HealthWell Foundation®, an independent non-profit that provides a financial lifeline for inadequately insured Americans, has opened a new fund to provide copayment and premium assistance to patients living with hyperoxaluria. Through the fund, HealthWell will provide…more.

Collaboration among Patient Advocacy Groups, Scientists & Clinicians Moves Porphyria Research Ahead

_____________________________________________________________________ By Desiree Lyon, Executive Director, American Porphyria Foundation Editor’s Note: Recognizing National Porphyria Awareness Week this week, we invited Desiree Lyon, the Executive Director of the American Porphyria Foundation (APF), to share how her organization is supporting research that improves treatment and ultimately seeks a cure for this rare…more.

Lung Cancer Alliance Moves Research Forward Through Innovative Partnerships

This week, Real World Health Care speaks with Jennifer King, Ph.D., Director of Science and Research for the Lung Cancer Alliance. The Lung Cancer Alliance is the leading and highest rated nonprofit organization dedicated to fighting lung cancer in the nation. Since 1995, it has played a critical role in…more.

Keeping Boston Strong: How Disaster Training at Osteopathic Medical School Helped Save Lives

When Danielle Deines crossed the finish line of the Boston Marathon on April 15, she had no idea her unique medical training as Doctor of Osteopathic Medicine would make a real difference in the life-and-death events that would soon unfold. A 2012 graduate of the Edward Via College of Osteopathic Medicine…more.

Multiple Sclerosis: Overcoming Pain

Real World Health Care continues our series on pain management by speaking with Dawn Ehde, PhD, Department of Rehabilitation Medicine, University of Washington School of Medicine. Dr. Ehde serves as a clinical psychologist and professor at UW. She conducts research evaluating the efficacy of various behavioral, exercise, and pharmacological interventions…more.

The Evolution of CAR-T Therapy

_____________________________________________________________________ By Lee Greenberger, PhD, Chief Scientific Officer, The Leukemia & Lymphoma Society Over the past two decades there’s been tremendous progress in understanding how to harness the body’s immune system to fight cancer. Today, immunotherapy is a mainstay of cancer treatment. One of the most exciting areas of immunotherapy…more.

Attacking All Angles of Alzheimer’s

Editor’s Note: This article originally appeared in Biotech Primer Weekly. For more information on the science behind the headlines, please subscribe. Alzheimer’s disease ranks as one of the toughest nuts to crack within drug discovery and development. Current treatments merely manage symptoms, so finding a better solution becomes more and…more.

Making Life Easier for Patients and Loved Ones: Meet MyHealthTeams

Talk to anyone impacted by a chronic condition – autism, multiple sclerosis, breast cancer – whatever disease or condition, they will all tell you it’s not easy. It’s not easy finding the support that best suits them. It’s not easy finding providers. It’s not easy period. At MyHealthTeams we create…more.

Nine Ways You Can Reduce the Pain and Fear of Needing a Needle

This is the second installment in a two-part series on what’s working to prevent and address needle fear. To learn more about needle phobia and what health care providers are doing, check out Part I: “A Shot of Courage for Those Who Fear Needles”. Click to view Amy Baxter’s TED talk…more.

From CancerCare: The Importance of Cancer Caregivers in Medical Settings

Being the primary caregiver to a cancer patient is a long, intense experience both physically and emotionally. The cancer caregiver often experiences all the highs and lows of the patient’s cancer journey and is there to observe every detail, for better or for worse. This makes the caregiver a beacon…more.