Important: Hotline Hours of Operation – October 4 – 11, 2022

Please note that the HealthWell Foundation’s hotline will operate on the following schedule October 4 – 11, 2022.

Tuesday, October 4, 2022: Delayed opening. Hotline will open at 1:30 p.m.

Thursday, October 6, 2022: Hotline will be closed and will re-open at 9:00 a.m. on Friday, October 7, 2022.

Monday, October 10, 2022: Hotline will be closed in observance of the holiday.

Tuesday, October 11, 2022: Delayed opening. Hotline will open at 1:30 p.m.

We encourage you to continue to use our Patient, Pharmacy and Provider Portals during this time.  Please note: if you are contacting us about a payment or grant, please email us at grants@healthwellfoundation.org and a representative will respond to your message as quickly as possible when our offices re-open.  Thank you for your patience and we look forward to continuing to serve you.

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By Desiree Lyon, Executive Director, American Porphyria Foundation  |  Apr 13, 2015

Collaboration among Patient Advocacy Groups, Scientists & Clinicians Moves Porphyria Research Ahead

Editor’s Note: Recognizing National Porphyria Awareness Week this week, we invited Desiree Lyon, the Executive Director of the American Porphyria Foundation (APF), to share how her organization is supporting research that improves treatment and ultimately seeks a cure for this rare disease.  Patient advocacy groups addressing rare diseases play a…more.

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