Last Updated: June, 2012
THE FOUNDATION IS NOT A MEDICAL PROVIDER NOR IS IT A “COVERED ENTITY” SUBJECT TO STATE OR FEDERAL LAWS GOVERNING THE PRIVACY OF MEDICAL RECORDS OR INFORMATION, INCLUDING THE HEALTH INSURANCE PORTABILITY AND ACCONTABILITY ACT OF 1996, COMMONLY REFERRED TO AS “HIPAA”.
Changes and questions
We receive and store personally-identifiable information that you voluntarily provide to us when you enter it on our website (such as when you apply for assistance) or when you provide it by mail, telephone, email, fax or in any other way. This information includes information that can identify you, including your first and last name, telephone number, address, social security number and other potentially sensitive personal information including income and health related information.
How we use personally-identifiable information
We use personally-identifiable information to provide, and to communicate with you about, our services - specifically to determine eligibility and to provide qualifying patients with assistance for certain out-of-pocket health care costs. We may transfer this information to our pharmacy card vendor in order to process payments, as well as to your healthcare providers and their staffs, pharmacy, employer, insurance company, and other persons or entities working on your behalf to obtain eligible treatment or therapy. We may also transfer this information to outside contractors, auditors, consultants or others hired by the Foundation to assist in providing financial or operational activities on the Foundation’s behalf, including technical and processing services and analysis of website performance. We do not transfer personal identifying information to any other third parties unless we receive your permission or we are required to do so by law, or we have a good faith belief that such disclosure is necessary to comply with a current judicial proceeding, a court order, a legal process served on the Foundation or to resolve any potential fraud or perceived irregularity in any audits of the accuracy of any documentation or information submitted to the Foundation by you or on your behalf, as deemed appropriate by the Foundation.
Non personally-identifiable information
Non personally-identifiable information is any information that, by itself, cannot be directly associated with you. This may include gender, age, ZIP code, disease area to which you applied for assistance, income, household size, and other information from the application. It may also include IP address (when it is unassociated with any personal information), the domain name and browser that you use to access the internet, the pages that you visited on our site and the address of the web site that you visited immediately prior to visiting our site.
How we use non-personally identifiable information
We use non-personally identifiable information for research and statistical purposes, and to monitor and improve the quality of our programs and website. We also use non-personally identifiable information in aggregate in our annual report and other materials we produce to educate donors and the public about the services we provide.
Transitions of Operations or Transfer of Assets In the event the Foundation goes through a transition, such as a merger, being acquired by another entity, bankruptcy, or selling a portion of its assets, users' personal information may be part of the assets transferred. We can provide no assurance that user will be notified in advance of the transfer, if any, of their personal information in connection with any such transition or transfer.
Security of your information
The Foundation takes commercially reasonable precautions to protect your personal information from loss, misuse and unauthorized access, disclosure, alteration or destruction. We utilize Secure Socket Layer (SSL) 128-bit encryption, firewalls and intrusion detection systems to keep your data safe. In addition, the website uses multi-layer application security that restricts a user’s ability to see someone else’s data. We only permit authorized persons to access your personal information and they may only use it for authorized business purposes. However, due to the nature of the Internet, computer networks, systems and other factors, no transmission of data over the Internet is guaranteed to be completely secure. It may be possible for third parties not under the Foundation’s control to intercept or access transmissions or private communications unlawfully, regardless of best intentions. As such, the Foundation cannot ensure or warrant the security of any information you transmit to the Foundation, including without limitation personally identifiable information.
The Foundation website includes links to other websites (the "Linked Sites"). In providing access to these Linked Sites, the Foundation is by no means endorsing the products or services on these Linked Sites. The Foundation is not responsible for the privacy practices or the content of the Linked Sites, and hereby expressly disclaims all responsibility and liability associate with use of the Linked Sites. We recommend that you review the privacy statements posted on those sites to understand their procedures for using and disclosing personal information.
Privacy of Children
The Foundation does not knowingly collect, store or disclose information about children under the age of 18 without parental consent. If we receive information from a child that we know to be under the age of 18, we will use that information only to inform the child that we must have parental consent.
Should you have any questions or concerns regarding this policy, please contact us at: firstname.lastname@example.org.
Limitation of Liability
Unavailability of Website
The Foundation reserves the right to alter, suspend or discontinue this website at any time for any reason without notice or cause. This website may be temporarily unavailable due to maintenance or malfunction of computer equipment.