Page 1
Page 2
Page 3
Page 4
Page 5
Page 6
Page 7
Page 8
Page 9
Page 10
Page 11
Page 12
Page 13
Page 14
Page 15
Page 16
Page 17
Page 18
Page 19
Page 20
Page 21
Page 22
RelievingthefnancialburdenorAmericasunderinsuredandtheiramilies2013ANNUALREPORT 2OURMISSIONTHalhWllFoudaoducacalbaocaoududpawhchocol-algda.CONENSAYaoChagChallgadNwOppouoChld...3ChamaL................6Hghlgh.......................7SuccSo...................8PdL.................9WhoDoWA..............10DaAa...................11SuppoPa...........12GouSuppo...............13TakYou......................14SuccSo..................15MakghMooYouDoao..16MakaDfcWhU........17BoadoDcoSaf.........182013Facal..............insertThisismysix-year-oldsonJames.WhenJameswasthirteenmonthsoldhewasdiagnosedwithPrader-WilliSyndromePWSacomplexgeneticdisorderaffectingappetitegrowthmetabolismcognitivefunctionandbehaviorandistypicallycharacterizedbylowmuscletoneshortstaturecognitivedisabilitiesproblembehaviorsandthehallmarkcharacteristicsinvoluntaryanduncontrollablechronicfeelingsofhungerandaslowedmetabolismthatcanleadtoexcessiveeatingandlife-threateningobesity.ThosewhohavePWSneedmedicationandstrictexternalcontrolsincludingpadlockingaccesstofoodtomaintainnormalweightandtohelpsavetheirlives.NotonlydoesthemedicationgiveJamesthephysicalstrengthneededtomaintaindailyactivityitalsohelpswithcognitivefunctiongrossandnemotorskillsandbodycomposition.Jameshasbeenonhistherapyforalmosttwoyearsnow.Whenhewastwoyearsoldhecouldonlywalkforbriefperiodsoftimethenhewouldhavetouseastrollerbecausehesimplywastootiredtowalk.AsaresultofhismedicationtodayJamesandIwalkfourtosixmilesaweek.Withoutthetherapythisexerciseprogramwouldnotbepossible.IhavenothingbutpuregratitudefortheHealthWellFoundationandtothepeoplewhodonatetothePediatricAssistanceFund.WithoutyourgenerousassistanceJameswouldnotbeasstrongasheistodayphysicallyormentallynorwouldwebeabletoshareourwalkstogether.TraciJamesmother 3RELIEVINGTHEFINANCIALBURDENFORAMERICASUNDERINSUREDANDTHEIRFAMILIESAYearoChangesChallengesandNewOpportunitiesorChildrenFortheHealthWellFoundation2013wasayearlikeeveryothersinceopeningourrstundin2004aswecontinuedourmissionoassuringadequatenancialprotectionorunderinsuredAmericans.HealthWellisproudtobeatrustedvoiceincopaymentassistanceoverthepastdecadehelpingunderinsuredpatientswiththeirout-o-pocketcostsorlie-changingmedicaltreatments.2013wasalsoayearochangeorHealthWellandchallengeswithinthelargerlandscapeohealthcareintheUnitedStatesespeciallyasAmericansbeganenrollinginnewhealthinsuranceplansundertheAfordableCareActACA.OnechangebroughtstrongexperiencedleadershiptothehelmasKristaZodetbecameHealthWellspresident.WhilethisisanewroleorKristasheiswellknowntoHealthWellsstafdonorsandboard.KristahasplayedkeyroleswithinHealthWellsinceitsearlydaysoferingaleveloknowledgecreativityguidanceandcommitmentthatmadehertheperectcandidatetoleadHealthWellintotheutureocopaymentassistance. HEALTHWELLFOUNDATIONAnotherchangeduring2013wasthelaunchotwonewundsthersttoassistpatientswithPeyroniesdiseaseandthesecondistheHealthWellPediatricAssistanceFundwhichweopenedinresponsetogrowingdemandromamiliesinneed.TankstothegeneroussupportoindividualdonorsourPediatricAssistanceFundhelpsensurethatamilieswithchildrenwhohavechronicconditionsincludingcerebralpalsycysticbrosisorjuvenilediabetesarenotorcedtochoosebetweenpayingbillsandafordingqualityhealthcare.2013wasalsoayearochallengesasthecountryreadieditselortheimplementationoinsurancereormsthatwouldbecomelawinearly2014undertheACA.WhiletheACAwillallowmillionsopreviouslyuninsuredAmericanstoobtainhealthcarecoverageatmoreafordableratesthaneverbeoreitwillalsoincreasethenumberopatientswhocantafordtopayorthetherapiestheirdoctorsprescribeespeciallyasthehealthcaresystemcontinuestoshitcostburdenstoindividuals.Evenemployer-sponsoredhealthinsurancehasbecomeanancialchallengeormanyAmericansasemployerspassmoreandmoreothecosttoemployees.AstheACAismoreullyimplementedin2014andmorepeoplebecomeinsuredHealthWellexpectstheneedorcopaymentassistancetoincrease.Tatswhywearesograteultothebiopharmaceuticalmanuacturersandothercompaniesthatareourmainsourcesonancialsupport.TeirgrowingcommitmenttoHealthWellalongwiththatoindividualdonorsismatchedbyHealthWellspledgethat100percentoeverydollardonatedgoesdirectlytopatientgrantsandservices.In2013HealthWellawardedmorethan72millioningrantsmakingarealdiferenceinthelivesoourgrantrecipients.Donationsatanylevelmakeadiference.Forexample10coversthecostoachildsdiabetesteststripsoronemonth.25helpsacancerpatientpayoranti-nauseamedicine.45supportsachildspituitaryhormonetreatmentoroneweek.50coverstheco-paymentortherstcourseolungcancertreatment.75coversthecostoachildslesiontreatmentorimmunosuppressivediseaseoronemonth.100supportsanti-rejectiontreatmentoranorgantransplantpatient.250coversachildslie-savingasthmamedicationoramonth.4UnderinsuranceinAmerica30millionpeopleintheU.S.areunderinsured80millionareunabletoafordthehealthcaretheyneed75millionstrugglewithmedicaldebtSourceCommonwealthFundApril2013Forworkingfamilieswithinadequateinsurancetreatingchildhoodillnessesmaymeanhundredsorthousandsofdollarsamonthinout-of-pocketcosts. RELIEVINGTHEFINANCIALBURDENFORAMERICASUNDERINSUREDANDTHEIRFAMILIES5HealthWellisproudtobeamongthehealthcareindustryleaderswhoarehelpingtocoverout-o-pocketcoststopatientsandtoincreaseaccesstohealthcare.Andwereproudtoshowcasethereal-worldinnovativeefortsootherswhoareworkingtowardsimilargoals.othatendwelaunchedablogin2013RealWorldHealthcare.orgwhichcelebratessuccessstoriesthroughoutthehealthcaredeliverychain.Teblogservesasaresourceorhealthjournalistslookingorevidenceowhatworkstoreducecostsincreasequalityocareandimprovetreatmentcompliance.WearealsoreachingouttopatientsdonorshealthcareprovidersandothersthroughourFacebookpageandwittereedwhichallowsustosharebreakingHealthWellnewsandtoencourageconversationsabouttheever-changinghealthcarelandscape.InadditiontoourenhancedsocialmediapresenceHealthWellmadeanumberoimprovementsin2013tosimpliyouroperations.Weaddednewtoolstoourwebsiteandenrichedourpatientandproviderportalswithautomatedstatusandpaymentreminders.Wealsoaddedalimitedlook-backperiodattherontoeachgranttoassistwithcostsincurredbypatientspriortoapplyingoraHealthWellgrant.AsHealthWelllookstoward2014weareresoluteinourmissiontocontinueprovidingnancialassistancetohelppatientspayout-o-pockethealthcarecostsincludingprescriptiondrugcoinsurancecopaymentsdeductibleshealthinsurancepremiumsandothers.Weknowwecannotachieveourgoalswithoutthenancialsupportocompaniesandindividualswhocareaboutothersinneed.othosewhodonatedtoHealthWellin2013weoferaverysincerethankyouwearegrateuloryoursupportandorhelpingusprovidehopeandhelptothousandsopatientsinneed.othosewhoareconsideringsupportingHealthWellweinvitecorporationsandindividualstohelpusmeettheongoingdemandorourassistanceandtoensurethatnopatientadultorchildgoeswithoutessentialmedicationsbecausetheycannotafordthem.WhatDoPeopleDoWhenTeyDontHaveAdequateHealthInsuranceDelaymortgageandutilitypaymentstocoverthecostotherapies.Cutbackonnecessitiessuchasood.Delayorskipdoctorappointments.Forgorecommendedmedicaltestsortreatments.Cutpillsinhalorrelyonhomeremedies.ThankyouformakinganotheryearoftreatmentpossibleforMason.SaraMasonsmother 62013wasayearochangeandprogressorHealthWell.WemarkedachangeinleadershipthroughtheappointmentoKristaZodetasournewpresident.KristahasbeenwiththeFoundationsince2005playingkeyrolesasweimplementedmoreandmoreeectivewaystopursueourcoremission.Kristastransitionintotheroleopresidentwasseamlessinlightoherunwaveringdedicationtowhatwedoherdeepknowledgeohowwedoitandhercreativityindevisingwaystodoitbetter.TewhatandtheitareallaboutassuringadequatenancialprotectionorinsuredAmericanstomeettheircost-sharingobligations.KristaassumesthisroleatatimeocontinuingchallengeortheFoundationandcharitablepatientassistanceprogramsoverall.AswepreparedorJanuary12014thedateonwhichmostothekeyinsurancereormsotheAordableCareActwereduetobeimplementedwecontinuedtoassesstheActsimpactonourbeneciaries.Asexpectedtheneedoroursupportdidnotabate.WeullyexpectthatthiswillcontinuetobethecaseastheActismoreullyimplementedin2014.AtthesametimetheocusoncostcontainmentasaccessexpandsbecomesmoreandmoreintenseandisaectingthehealthcaresystemonmanylevelssimultaneouslyeortstoshitcostocareburdenstoindividualswithinwhatispermittedundertheActwillcontinueapaceandthereisincreasedcostpressureandnancialstressonthedrugmanuacturersthatremainourprincipalsourcesonancialsupport.Moredemandcoupledwithdecreasingresourcesisanunenviablechallengebutonethatwearecondentwecansuccessullymeet.Whilethehealthcaresystemisundergoingpotentiallyradicaltransormationwemustremainocusedonassistingthoseindividualswhoneedourhelpinweatheringwhatwehopewillbeatransitiontoamoreefcientandequitableworld.Astheyareanintegralpartoassuringourcontinuingabilitytoperormourcriticalrolewearedeeplygrateultoourcorporateandindividualdonors.Wecontinuetodiversiyandbroadenournancialbaseascurrentandpotentialdonorsrecognizetheimportanceowhatwedohowefcientlywedoitandhowweollowthroughonourcommitmentthat100oeverydonateddollargoestopatientgrantsandservices.AsChairmanotheBoardIwouldlikenothingmorethanorourmissiontobeullledandorinsuredAmericanstoindependentlypossessthenancialcapacitytoaccessthemedicaltreatmentstheyneed.Butalasthatwillnotbethecaseortheoreseeableuture.Sotheneedorwhatwedowillgoonandwehavemoreworktodotobemorecreativeabouthowwemosteectivelysatisyourmission.WhetherthroughdevelopinginnovativeundssuchasourPediatricAssistanceFundorurtherdiversiyingourdonorbasethroughdirectmailsocialmediaandthelikewewillremainsteadastinpursuingourmissionbutwewillcontinuetoneedyourgeneroussupport.Wethankyouorwhatyouhavedoneandlookorwardtopartneringwithyouaswetogetherdoevenmoretomeetthecurrentchallengesoassuringadequatenancialaccesstohealthcare.WarmwishesStephenM.WeinerBoardChairFromOurBoardChair 7RELIEVINGTHEFINANCIALBURDENFORAMERICASUNDERINSUREDANDTHEIRFAMILIES2013HIGHLIGHSGranted72087597inawardsto24475patients.Enhancedourgrantsmanagementservicesthroughtheimplementationo3a12-monthrollinggrantcyclewhichallowspatientsoneullcalendaryearpriortore-applying3newreal-timeautomaticreminderstoadvisepatientsandproviderswhendocumentationisdue3enhancedportalcapabilitiestoallowpre-approvedgrantrecipientstoviewalistodocumentsstillrequiredtoapprovetheirgrantHandledmorethan202300callsandprocessed31369applicationsand118990claims.AnnouncedachangeinleadershipthroughtheappointmentoKristaZodetasHealthWellFoundationpresident.LaunchedanewprogramtoprovidecopaymentassistancetopatientswithPeyroniesdisease.OpenedtheHealthWellPediatricAssistanceFundtoassistchildren18yearsoldoryoungerlivingwithachronicorlie-alteringconditionthattheiramiliesarestrugglingtotreatduetocost.Troughthisundweprovidefnancialassistancetoamiliessotheirchildrencanstartorcontinuecriticalmedicaltreatmentsregardlessodiseasetypeorcondition.LaunchedtheRealWorldHealthCarewww.realworldhealthcare.orgblogaone-stopresourceorjournalistsandothersinterestedinourevolvinghealthcaresystem.TeblogsponsoredbyHealthWelldrawsonthepracticalknowledgeohealthsystemsandhealthcareproessionalsromdiversefeldswhounderstandpatientneedsandthechallengesacingthosewhootenhavetochoosebetweenpayingtheirmedicalbillsandputtingoodonthetable.Spreadourmessagewithmorethan200millionmediaimpressionsinnewsoutletsincludingUSATodayYahooBostonGlobeSanFranciscoChronicleandWashingtonBusinessJournal. SUCCESSSTORIESOursonAlejandronowalmosttwoyearsoldwasdiagnosedwithCysticFibrosisCFwhenhewassixweeksold.Alejandroisatwinandwewerethrilledtowelcometwonewbabiesintoourfamily.AlongwithourexcitementthereweremanysadtimesbecausewewerescaredoftheunknownCFandourbiggestfearasparentscametruewithhisdiagnosis.Hehasachronicillnesswhichcanbemanagedsomewhatbutthereisnocure.CFrequiresAlejandrototakemanymedicationsandbreathingtreatments.HisdoctorsprescribedmedicationduringtheRSVseason.HewasprescribedoneshotpermonthforatotalofveshotsfromNovemberthroughMarch.Ourout-of-pocketcostis750pershotwhichisahugenancialburdenasweareafamilyofvechildrenandtwoadults.WeappliedtotheHealthWellFoundationfornancialassistanceinordertobeabletopaythecopaymentforAlejandrostreatment.WealsocontactedthemanufacturerofthedrugbutunfortunatelyhavingCFdoesnotmakeyoueligibletoreceivenancialsupportandwewerenotabletoqualifyforassistancethroughtheirprogram.Notbeingabletoaffordmedicationforourchildisdevastatingandextremelyfrustrating.ThisiswhywearesothankfulforthePediatricAssistanceFundthroughtheHealthWellFoundation.WithoutagrantwewouldnothavebeenabletoaffordthisextremelyimportantmedicationforAlejandro.Receivinghelpwasheartwarmingbecausealthoughthecontributorstothefunddonotknowoursontheywerewillingtodonatemoneytoensurethatachildwhoisinneedofmedicationreceivesit.OnbehalfofAlejandroandourfamilywewouldliketothankallofthosekindpeoplewhodonatetheirhard-earnedmoneyforchildrenlikeAlejandrowhoneedextrasinorderlive.RubenThelmaAlejandrosparentsOurdaughterAnnawasbornwithabirthmarkonherfaceandscalp.ACTscanofherheadconrmedthediagnosisofSturge-WeberSyndromeararedisorderaffectingthebrain.Whenshewasjust3weeksoldshehadherrstsetofseizures.Itwasterrifyingtoseeherlittlebodysooutofcontrol.Shewasadmittedtothehospitalandstartedonmedication.Thedoctorswereabletocontroltheseizuresbutneverfortoolong.Wechangedmedicationsavoidedactivitythatmightover-fatigueherstruggledthroughspecializeddietsandprayedforacure.Annawasscheduledtoundergoaradicalsurgerytoremovethediseasedhalfofherbrain.Weknewthiscouldofferherafuturewithoutseizuresbutwealsoknewtheincrediblecostwefaced.WiththehelpoftheHealthWellFoundationAnnahadhersurgery.Sheisbackhomeseizure-freehealingandgrowing.OurfamilyhasbeenabletofocusourattentiononAnnasrecoveryknowingthenancialburdenhasbeenreduced.WearesogratefulforthenancialsupportHealthWellhasofferedtous.WiththeirhelpweareabletocelebratethewonderfullittlegirlGodhasblesseduswithandwelookforwardtoherbrightfuture.MaryAnnasmom 9AsHealthWellFoundationsnewpresidentImproudtoleadHealthWellthroughthechanginghealthcarelandscape.HavingworkedwithintheorganizationormorethaneightyearsIveseenthediferenceHealthWellhasmadeinhelpingpatientsreceivethemedicalcaretheydesperatelyneed.MyvisionisorHealthWelltoserveasthebridgeorinsuredpatientstoimprovetheirhealthoutcomesbyhelpingthemaccessmedicaltreatmentstheyotherwisecouldnotaford.Sinceopeningourrstundin2004HealthWellhasbeenatrustedvoiceincopaymentassistance.Ourcommitmenttoassistunderinsuredpatientswithout-o-pocketcostsorlie-changingmedicaltreatmentremainsthecornerstoneoouroperations.AsmoreAmericansobtainhealthcarecoverageundertheAfordableCareActincreasingthenumberopatientswhocantafordtopayorthetherapiestheirdoctorsprescribetheneedorassistanceismorecriticalthanever.During2013weimplementedinnovativeprogramstomeetthegrowingneedsothoseweserveincludingmorechildren.WewereexcitedtolaunchHealthWellsrst-everPediatricAssistanceFundinresponsetotheincreasingrequestsromparentswhourgentlyrequireaccesstocriticaltreatmentsortheirchildandhaverunoutooptions.Withthisundamilieswithsickchildrenareabletorelievetheweightoexpensesthatotherwisearehangingovertheirheads.Teycanstartorcontinuecriticalmedicaltreatmentsregardlessotheirillness.Tisprogramisuniquebecauseitisnotdisease-specicandtheundingwasmadepossiblebytheverypatientswhohavebeentouchedbyourworkandwantedtopayitorwardtohelpotheramiliesinneed.Withinaewmonthsateropeningtheundwehadassistedmorethan20amiliesinneed.Wearegrateultotheindividualdonorswhohelpedusmakethisundareality.WealsoopenedanewundtoassistpatientswithPeyroniesdisease.Whetheradiseaseischronicoracuteinnatureitisimperativeorpatientstohaveaccesstocaretoensureproperdiseasemanagement.TroughthisundwearenowabletoprovidecopaymentassistancetoPeyroniesdiseasepatientswhomaynothavesoughtmedicaltreatmentduetocost.Finallywemadeanumberoenhancementstosimpliyouroperations.Weaddednewtoolstoourwebsitesuchasundandmedicationlistingsandweenrichedourpatientandproviderportalswithautomatedstatusandpaymentreminderstohelppatientstheiradvocatesandprovidersmanagetheirgrant.Additionallyweaddedalimitedlook-backperiodattherontoeachgranttoassistwithcostsincurredbypatientspriortoapplying.Withoutourdedicateddonorsnoneothiswouldhavebeenpossible.Weareeternallygrateulorthehopeandhealingourdonorshavebroughttothe175000patientswhohavebeentouchedbyaHealthWellgrant.Tankyouoryourcontinuedgenerosityandormakingitpossibleorustoimpactsomanylives.IwouldpersonallyliketothankmydedicatedstafourBoardoDirectorsandourdonorsortheircontinuedtrustinandsupportoourservices.Wearehonoredtobearecognizedleaderandinnovatorincopaymentassistanceandpledgetocontinuetooperateinamannerthatisdeservingandworthyothattrust.SincerelyKristaZodetPresidentFromOurPresident HEALTHWELLFOUNDATIONWhoDoWeAssistAgebreakdownunder35635-491350-64336548Maritalstatus46.1oourpatientsaresingleand53.9aremarriedGenderFemale58.7Male41.3Top10statesassistedFloridaTexasCaliorniaOhioPennsylvaniaNewYorkNorthCarolinaGeorgiaTennesseeandIllinoisAveragehouseholdsizeandincomeOurpatientsaverageincomeis28500approximately184otheFederalPovertyLevelora2-personhousehold.Averagegrantamountin20132427TopdiseaseareasModeratetoSevereAsthma26.71ImmunosuppressiveTreatmentorSolidOrganTransplantRecipients21.94AutoimmuneincludingAnkylosingSpondylitisPsoriaticArthritisPsoriasisandRheumatoidArthritis15.74SecondaryHyperparathyroidism8.10CytomegalovirusDisease5.32ReferralsourcesProviderPhysiciansOfce31.63ReimbursementSupportLinesManuacturer18.59Pharmacy14.91CaseManagerSocialWorker14.26AnotherFoundation5.54PrivatePayerInsurer4.21Website2.40PublicPayerInsurerFinancialCounselorWordoMouthPatientAdvocacyOrganizationAnotherHealthWellPatientMediaorElectedOfcialLessthan9Proportionofassistancerequestsforpremium4.25RequestsinSpanish53110 11RELIEVINGTHEFINANCIALBURDENFORAMERICASUNDERINSUREDANDTHEIRFAMILIESDiseaseAreasAcutePorphyriasANCA-AssociatedVasculitisWegenersandGranulomatosiswithPolyangiitisModeratetoSevereAsthmaAutoimmuneincludingAnkylosingSpondylitisPsoriaticArthritisPsoriasisRheumatoidArthritisBoneMetastasesCarcinoidTumorsandAssociatedSymptomsChemotherapy-inducedNeutropeniaChronicGoutChronicMyeloidLeukemiaCytomegalovirusDiseaseDupuytrensDiseaseHeadandNeckCancerImmunosuppressiveTreatmentorSolidOrganTransplantRecipientsIn2013weawardedmorethan24000grantstoinsuredindividualsorassistanceinmeetingtheirout-o-pocketcostsormedicaltreatmentsintheollowingdiseaseareasInfammatoryBowelDiseaseincludingCrohnsdiseaseandulcerativecolitisIronOverloadasaResultoBloodTransusionsMetastaticMelanomaPediatricAssistancePeyroniesDiseasePost-MenopausalOsteoporosisSecondaryHyperparathyroidismSystemicLupusErythematosusWilmsTumorWithoutyourgeneroussupportIcouldnotevenhavebegunmytreatment.Stella HEALTHWELLFOUNDATION12HealthWellishonoredtohaveworkingrelationshipswithhundredsoorganizationsandbusinessestohelpusulllourmissionbyprovidinginormationtopatientsenhancingourprogramservicesandraisingawarenessaboutcopaymentassistance.WewouldliketorecognizeseveralorganizationssomeowhicharealsodonorsortheirassistanceandsupportABDataAccountingSeedAccredoPharmacyAetnaSpecialtyAmericanPorphyriaFoundationAxiumPharmacyBankoAmericaBioMedicalInsightsBuzzyCancerCareCaremarkSpecialtyPharmacyCovanceMarketAccessServicesSpecialtyPharmacyDaVitaDesignPositiveDiplomatPharmacyDocumentManagementSolutionsFloridaCancerSpecialtiesFreseniusHarperEngravingHCMAKidneyTransplantClinicinVentivHealthInc.LupusFoundationoAmericaMintzLevinCohnFerrisGlovskyandPopeoPCMLStrategiesLLCMorganStanleyMSSotServeMyCrohnsandColitisTeamMyHealthTeamsNeedyMedsNewTargetOberKalerOhioStateUniversityMedicalCenterTransplantsRafaCo.RightSourcePharmacySalesForceSouthTexasOncologySpencerDermatologyAssociatesTexasOncologyTHCPharmacyoNevadaTotalLieCarePharmacyUNCHospitalsUSOncologyWHITECOATStrategiesOurSupportersandPartners RELIEVINGTHEFINANCIALBURDENFORAMERICASUNDERINSUREDANDTHEIRFAMILIES13ChangingLivesTroughYourGenerousSupportHealthWellissupportedbycontributionsromcorporationsandprivateindividualsmanyowhomhavebeentouchedbytheworkwedo.TeFoundationisentirelyindependentandisnotcontrolledorinfuencedbyanyoitsdonors.TeassistancethatHealthWellprovidestopatientsisbasedonobjectivecriteriathattheFoundationappliesconsistentlyandinaccordancewithapplicablelaws.AsacopaymentassistanceoundationHealthWelloperateswithinacomplexregulatoryramework.TeregulationsgoverningthehealthcareindustryaswellasaavorableAdvisoryOpinionthattheDepartmentoHealthandHumanServicesOceoInspectorGeneralOIGissuedtoHealthWellsetstandardsthatHealthWellmustmeettostayincompliancewithapplicablelaws.AccordingtoitsOIGopiniontheFoundationmaynotdisclosetheidentityoitsdonors.Tisensuresthatweareabletooperateindependentlyandinthebestinterestsoourpatients.Tankstoourdedicateddonorsweoerpatientsachanceatpositivehealthoutcomesandproperdiseasemanagementgoalsthatwearepowerlesstoachievealone.TroughthegenerosityoourdonorsHealthWellhasalreadyprovidednancialassistancetomorethan175000patientswhowithoutsuchassistancewouldlikelyhavebeenunabletoaordmedicallynecessarytreatments.Eachyearwestrivetoassistasmanypatientsaspossiblethroughthedonationswereceive. 14HEALTHWELLFOUNDATIONWereceivehundredsocallsrompatientsprovidersandpharmacieswhoposeavarietyoquestionstoourcallcenterrepresentativeseveryday.TroughouttheyearcallersareaskedtoparticipateinaquicksurveytoletusknowhowwearedoingandhowwemaybeabletomaketheirHealthWellexperienceevenbetter.Wewouldliketothankthoseoyouwhotookamomenttotakethesurveyandsharesomeotheeedbackwereceivedromthecallcenterrepresentatives.Patientsandproviderscontinuetoappreciateouruser-riendlyonlineportalstomanagetheirgrants.In2013wereceivednewuserregistrationsrommorethan750providersandmorethan3200patientsPatientsenjoyedgreaterfexibilityandstreamlinedprocessingthrough3new12-monthrollinggrantcycles330-daylook-backsornewlyapprovedgrants3automaticreminderstopatientstoalertthemograntenddatesandpaymentsubmissionsthroughthepatientandproviderportals3enhancedportalcapabilitiestoallowpre-approvedgrantrecipientstoviewalistodocumentsthatarestillrequiredinordertoullyapprovetheirgrant.Youreedbackisveryimportanttousandhelpsusmakeenhancementstoourprocessessoyoucanspendlesstimeworryingaboutyourgrantandspendmoretimeocusingongettingandstayinghealthy.TankYouorHelpingUsHelpOthers 15SUCCESSSTORIESFinnwashospitalizedtwiceforthreedaysforabreathing-relatedillness.ApediatricpulmonaryspecialistdeterminedthatFinnlikelyhadasthmainaverysevereform.BecausehewassoyoungtheycouldonlyclassifyitasReactiveAirwayDiseasemeaningthateverytimehehadanysortofinfectionhisairwaysandlungswouldreactbystartingtocloseoff.Iwasterried.Thedoctorreassuredmethatitwasmanageablewithpreventiveandrescuemedication.Iwasrelievedonlytondoutthatmyinsurancenolongercoveredprescriptionsuntilthedeductiblewasmetinmyfamilyscase5000.IcalledthemanufacturerofFinnsmedicationandtheyadvisedtheydidnothaveanythinginplaceasfarascouponsgobuttocontacttheHealthWellFoundation.Ispokewithacaringrepresentativewhotooktimetohearourstory.ThenwordsIwasprayingtohearcameacrossthelineYouareapprovedforagrantthroughtheHealthWellFoundation.Youwillnothavetoworryaboutpayingforyoursonsmedicationforawholeyear.Iwascryingandcouldnotnishtheconversationhandingthephoneofftomyhusbandtoworkoutthedetails.IcontinuetodonatetoHealthWellbecauseifIcanhelpHealthWelltakeawaytheworryfromonefamilyastheydidforusitisallworthit.ThankyouHealthWellFoundation.ForevergratefulAshleyFinnsmotherIwasveryintimidatedbythecostofmymedicationwhenreviewedbymytransplantteamsocialworker.IstartedguringoutwaysIcouldaffordit.ThenourcaseworkertolduswecouldapplyforagrantfromtheHealthWellFoundation.IwasecstaticandveryrelievedwhenIreceivedthegrant.Nothavingtheworryofanancialburdencausedbydrugcostsmademyrehabilitationfromhearttransplantsurgerymucheasierandgavemegreatpeaceofmind.IappreciateHealthWellsupportingmeinmyeffortstogetwellagain.IdontknowhowmuchmoneyIwillhaveleftwhenIpassaway.HopefullythatwonthappenformanyyearsbutIhavespeciedapercentageofmyestatetobedonatedtotheHealthWellFoundation.IthankeveryoneattheFoundationforalltheirhelp.RonaldItwasovariancancerspreadingtothecolon.ComingoutofsurgeryIhadtolearnaboutanileostomychangingthebagfoodnotdigestingetc.Therstchemotreatmentwasgivenevenbeforeleavingthehospital.MyhusbandcalledmanyplacesnocancersocietywouldhelpOnesocietyaskedwhattypeofcanceritwasandrepliedtherearenofundsforovariancancerwecannothelp.Anotherorganizationhadalreadyusedtheirfundsfortheyear.MyoncologistssecretarytoldusabouttheHealthWellFoundation.AftertalkingtoyourgrouptheanswerwasYESyouwouldhelp.Thereversalsurgerywasdonewiththeileostomyandthecancercameback.MorechemoThankyouforbeingthereinmytimeofneed.IcanseehowOurLordworksinmanywaysthroughmanypeople.Lynn HEALTHWELLFOUNDATION16MakingtheMostoYourDonationHealthWellhasaproventrackrecordousingdonationseectivelyandefciently.RecognizedbyForbesCharityNavigatorandTeChronicleofPhilanthropyasoneoAmericaslargestandmostefcientcharitiesHealthWellensuresthatyourgenerousgitdirectlysupportspatientsinneed.Weworkineverywaypossibletomaximizethepoweroeachdollardonatedandtoservethemostpatientswithourdonatedunds.AlladministrativeandundraisingcostsarenancedbyHealthWellandarenottakenoutoanydonationwhichmeansthat100oyourdonationgoesdirectlytopatientgrantsandservices.Giveonlinewww.HealthWellFoundation.orgMailyourcheckpayabletotheHealthWellFoundationHealthWellFoundation9801WashingtonianBoulevard9thFloorGaithersburgMD20878PhoneHealthWellsDevelopmentOfce240632-5300EmailSupportHealthWellFoundation.orgOurnancialinormationcanbeobtainedbycontactingusattheaboveaddressorbyvisitingourwebsiteatwww.HealthWellFoundation.org. 17RELIEVINGTHEFINANCIALBURDENFORAMERICASUNDERINSUREDANDTHEIRFAMILIESMakeaDierenceWithUsTerearemanywaysyoucanhelpsupportpaitentsinneed.OutrightGiftsYourgeneroustax-deductiblegitatanylevelwillhelppatientspayorlie-changingmedicaltreatmentstheyotherwisewouldnotbeabletoaord.TerearemanywaystogiveBecomeamonthlysupporterMakeaone-timecashgitGiveinmemoryoorinhonorosomeonespecialMakeacharitablegitostocksbondsormutualundsWorkplaceandMatchedGiftsEmployeescansupporttheHealthWellFoundationbynamingtheFoundationasarecipientoaworkplacecampaigncontribution.Manyemployerswillmatchpersonalgitsmadebytheiremployeessometimesevenoeringtotripleanemployeespersonaldonation.PleasecontactyourHumanResourcesDepartmenttondoutiyourcompanyoersaworkplacegivingprogramoritheywillmatchyourgittotheHealthWellFoundation.EstateGiftsYoucanmakeanextraordinarydierenceinthelivesoothersbymakingaplannedgittotheHealthWellFoundation.RememberingtheHealthWellFoundationinyourwillortrustisoneothemostmeaningulgitsyoucanoertothosewhostrugglewithchronicillnessandneedthenancialsupportortheirliesavingmedicationswhentheirinsurancesimplyisntenough.FormoreinormationonhowyoucanincludetheHealthWellFoundationinyourestateplanspleasecontactourDevelopmentOfceat240632-5300oremailsupportHealthWellFoundation.org.CorporateGiftsTerearemanywaysorcompaniestobecomeinvolvedwiththeHealthWellFoundation.Opportunitiesareavailabletolaunchnewprogramsandcause-marketingcampaignsortosupportoneoourcurrentdiseaseunds.Yoursupportallowsustokeepundsopencreatenewundsorprioritydiseasesandmeetthegrowingneedorourservices.PleasecontactHealthWellsDevelopmentOfceat240632-5300todiscusshowwecancollaborate.Wewouldbehappytoworkwithyoutodesignapartnershipwithmutualimpact.ConnectWithUsFollowandTweetEveniyouarenotinapositiontomakeamonetarycontributiontoHealthWellhelpingusspreadthewordabouttheimportantworkwedocanmakeasignicantimpactonthelieoapatientwhoneedsahelpinghand.LikeusonFacebookatFacebook.comhealthwelloundationandollowusonwitterHealthWellOrgtohelpbroadenourreachandincreaseawarenessaboutourprogramsandresources.YoucouldchangesomeonesliewithasimplepostortweetPleasevisitusonlineatwww.HealthWellFoundation.orgtolearnmoreandtomakeatax-deductiblegittoday. 18HEALTHWELLFOUNDATIONBoardoDirectorsStephenM.WeinerBoardChairChairNationalHealthLawPracticeMintzLevinCohnFerrisGlovskyandPopeoPCJerriScarzellaBSNViceChairTreasurerPoliciesProceduresCoordinatorHolyCrossHospitalNancyCarteronMDFACRViceChairSecretaryConsultantRheumatologyAutoimmuneInfammatoryDisordersCaliorniaPacicMedicalCenterAssociateClinicalProessorDept.oMedicineDivisionoRheumatologyUniversityoCaliorniaatSanFranciscoDavidL.KnowltonPresidentCEONJHealthCareQualityInstituteDonLissMDVicePresidentClinicalProgramsPolicyIndependenceBlueCrossSuzanneM.MillerPhDProessorandDirectorPsychosocialBehavioralMedicineDepartmentFoxChaseCancerCenterCHIEFETHICSADVISORJefreyPeppercornMDMPHAssociateProessoroMedicineDivisionoHematologyOncologyMassachusettsGeneralHospitalandHarvardUniversityStaKristaZodetPresidentShelaHalperDirectoroStrategicDevelopmentMarketingBaskaranVellanduraiDirectoroInormationTechnologyFinanceDianeByrneSeniorAssociateDirectoroOperationsRitaColemanAssociateDirectoroOperationsGinnyDunnAssociateDirectoroCommunicationsMarketingCollinAlexanderSeniorAccountantTimVawterFoundationCoordinatorJudyMurphySeniorAccountantPT RELIEVINGTHEFINANCIALBURDENFORAMERICASUNDERINSUREDANDTHEIRFAMILIESTheHealthWellFoundationPediatricAssistanceFundhasbeensuchaHUGEBLESSINGtoourfamilyofnine.InDecember2012ourfamilymovedtoanewhometostartlivingamorehealthylifestyle.WithinafewshortmonthsouroncehealthyfamilydevelopedType1diabetesasthmachroniclungproblemschroniccoughsheadachesBellsPalsyandrecurringpancreatitis.Afterinvestigatingwediscoveredthatthehousewehadmovedtohadtoxicmoldandwefoundourselvesrunningforourlives.Wewereluckyenoughtogetoutoftheenvironmentwithinonlysevenmonths.Unfortunatelywehavecontinuedtosufferthedevastatingeffectsofthesepoisons.Iagonizedoverhowtopaytogetmyfamilythemedicalhelpthatwesodesperatelyneeded.Thetestingweneededtocheckforthepresenceofthesetoxinsis700out-of-pocketperpersontheinitialvisitwiththeenvironmentaldoctorisabout500perpersonout-of-pocketandthemonthlyout-of-pockettreatmentcostsrunbetween400and700perpersonfor3-12months.TheabilityforourfamilytoaffordthemedicalhelpthatwesodesperatelyneededwasIMPOSSIBLEespeciallywithmyhusbandourmainbreadwinneroffofworkformorethanhalftheyeareitherinthehospitalorrecoveringfrom11pancreaticattacks.AfterexploringseveraldifferentavenuesIwasnallyreferredtotheHealthWellFoundation.IwaselatedwhenIreceivedanemailempathizingwithourstoryandinformingmethattheyweregoingtotrytogetusthehelpthatweneeded.TosayIwaselatedandfeltgreathopeisanunderstatement.WithinafewweekswewereapprovedforgrantsforeachofthechildrenthroughHealthWellsPediatricAssistanceFund.WiththehelpofHealthWellwehavebeenabletomoveforwardinhealingourfamily.Thesetreatmentsaremakingatremendousdifferenceinthehealthofourfamily.Westillhavealongroadaheadofusbutwefeelsomuchhope.GodblessthiswonderfulfoundationandthedonorswhohavemadeitpossibleforpeoplelikeustoreceivethehelpthatweneedJillmotherofPediatricAssistanceFundgrantrecipients 100002000030000400004062230094324902422722397156236699102436128966470131711803214029142242163510513163221396230609012015.949.683.2103.3137.5144.0124.092.672.12.3PATIENTSASSISTEDGRANTSAWARDED2013REVENUEExpenseRatiosPatientGrantsandServices95.07Management2.88Fundraising0.87EducationandOutreach1.18RevenueDonationsandOtherIncome18482644InvestmentIncome2020853otalRevenue20503497ExpensesPatientGrantsandServices38170400Management1157319Fundraising347636EducationandOutreach472752otalExpense401481072013EXPENSESEDUCATIONOUTREACH1.18FUNDRAISING0.87MANAGEMENT2.88PATIENTASSISTANCEOPERATIONS17.79AWARDSTOPATIENTS77.29HealthWellsGrantProcess.oensurecontinuityofcareweawardagranttoapatientfora12-monthcycle.Howevernoteverypatientuseshisorherfullgrant.Inthesecaseswereallocatetheunusedgranttootherpatientsinneedasquicklyaspossible.Tismeansweawardsomeofourgrantdollarsmorethanonce.RevenueandExpenseSummary 2013STATEMENTOFFINANCIALPOSITIONASOFDECEMBER312013AssetsCashandcashequivalents2145663Investments36833266InterestReceivable10289PledgesRecievable2360000PrepaidExpenses25102Deposit101883ComputerSoftwareandEquipmentnet397555TOTALAssets41873758LiabilitiesandNetAssetsLiabilitiesAccountsPayableandaccruedexpenses800623Patientscommitmentspayable1273355PortfoliaLoanPayable1005000TOTALLiabilities3078978NetAssetsUnrestricted4002497Temporarilyrestricted34792283TOTALNetAssets38794780TOTALLIABILITIESNETASSETS41873758 HealthWellFoundation9801WashingtonianBlvd.9thFloorGaithersburgMD20878www.HealthWellFoundation.orgFacebookFacebook.comhealthwellfoundationTwitterHealthWellOrgYouTubeSearchHealthWellFoundation